I have had a lot of new followers recently, so here’s an intro! .
My name is Dela, I’m an autistic parent to 3 children, one of whom is also autistic. In addition to being autistic, I’ve been diagnosed with dyscalculia, ADHD, and Ehlers-Danlos syndrome, which is all to say, I lead a very busy life! I’m currently a full-time student in a Bachelor of Fine Arts degree, and a working artist. Before pursuing art, I’d taken Disability Studies, and worked as a community support for other autistic adults. In the future, I plan to become certified as an art therapist, and work towards making creativity truly accessible in my community. .
Hvppyhands was created because my family was facing a very daunting problem. After some significant funding cuts to education, and the resulting reduction in supports for disabled students, I realized that my daughter’s diagnosis was preventing her from accessing preschool in our community. I felt helpless to change this reality, and decided to do what I know, and vent my frustration by making something. I’ve since spoken to several news outlets, and at my province’s legislature, about the importance of early childhood education for autistic children in Saskatchewan. I was plunked, quite literally, into the world of advocacy. After people-ing way more than I’d ever hoped to, my daughter was given a spot in a local preschool, and has been thriving in a supportive, play-based environment since. I’ve continued to advocate, because we still have a long way to go. The encouragement I’ve received from my community, both locally and abroad, since starting this journey gives me a lot of hope! Unless otherwise stated, I create all of my own content, and I’m happy to share it where it’s needed. Nice to meet you all! 🧠🌈✨
Im Not gonna lie some days i am sad and grumpy and angry about losing the loss of my stomach,intestines, bladder, full lung function and legs and i get fustrated about have to wear masks everywhere cause im immunodeficiency and prone to sepsis and the epilepsy which is a pain in the ass
And im sad that in just seven months ive become dependent on people showering me and helping me get dressed, being dependent on 5 different tubes and needing even more things in place to help me then before this admission
The loss of my legs has really thrown me especially when i have falls and cant get back up
But i guess i dont have a choice so i should make the most of what i got ya know
This wheel chair is my wings not my anchor so im not gonna let it bring me down and yes it will take practice but im gonna work hard and im going to get strong and live the best life i can for as long as i can!! .