#developmentaldelay medias

Posts tagged on #developmentaldelay

Top Posts Recent Posts

Top Posts

My son’s words are coming fast and furious these days but there are still some coveted “firsts” that really stop me in my tracks. This was one of those moments and I was floating on happiness as I laid on the floor next to his bed, holding his hand and waiting to hear him snore. I know he has a lot to say and he’s just waiting for the right moments to let loose. .
.
#autismdads #autismdad #autismmoms #autismmom #autismmum #autismmommy #autismmama #autismparent #autismparents #autismparenting #autismfamilies #autismfamily #autismfamiliessticktogether #autismsupport #autismcommunity #autismjourney #autismlife #autismlove #autismacceptance #autismawareness #autismadvocate #speechdelay #developmentaldelay #differentnotless #nonverbalautism #nonverbal #childhoodapraxiaofspeech #apraxia #apraxiaawareness.

My son’s words are coming fast and furious these days but there are still some coveted “firsts” that really stop me in my tracks. This was one of those moments and I was floating on happiness as I laid on the floor next to his bed, holding his hand and waiting to hear him snore. I know he has a lot to say and he’s just waiting for the right moments to let loose. . . #autismdads #autismdad #autismmoms #autismmom #autismmum #autismmommy #autismmama #autismparent #autismparents #autismparenting #autismfamilies #autismfamily #autismfamiliessticktogether #autismsupport #autismcommunity #autismjourney #autismlife #autismlove #autismacceptance #autismawareness #autismadvocate #speechdelay #developmentaldelay #differentnotless #nonverbalautism #nonverbal #childhoodapraxiaofspeech #apraxia #apraxiaawareness ...

Being a special needs mom is not for the faint of heart.  Keeping faith that your child is capable of far more than their prognosis is even harder.  But the joy of hitting new inchstones and pushing forward is worth every sleepless night and every therapy session.  #remysrevenge #ilovethiskid #stxbp1 #boat! #happy #love #specialneeds #brooklyn #cbd #chineseherbs #hemp #radicalroots #inchstones #developmentaldelay #warrior.

Being a special needs mom is not for the faint of heart. Keeping faith that your child is capable of far more than their prognosis is even harder. But the joy of hitting new inchstones and pushing forward is worth every sleepless night and every therapy session. #remysrevenge #ilovethiskid #stxbp1 #boat ! #happy #love #specialneeds #brooklyn #cbd #chineseherbs #hemp #radicalroots #inchstones #developmentaldelay #warrior ...

Let her eat CAKE! Madison ate table food for the first time today, and she rocked it! This girl acted as if she’s been eating cake for years and mama & daddy could not be happier! 💁🏻‍♀️🍰 Can’t wait to say goodbye to purées and hello to SO many more incredible food options for my girl! Read more about this huge milestone on the blog now! Link in bio!
.
.
.
#NoGoingBacks #MiracleMaddie #Meningitis #Survivor #SpecialNeeds #SpecialNeedsMom #MommyBlogger #MomBlog #SAHM #Motherhood #BrainInjury #TBI #SpeechTherapy #FeedingTherapy #EpilepsyWarrior #InfantileSpasms #DevelopmentalDelay #Therapy #Milestones.

Let her eat CAKE! Madison ate table food for the first time today, and she rocked it! This girl acted as if she’s been eating cake for years and mama & daddy could not be happier! 💁🏻‍♀️🍰 Can’t wait to say goodbye to purées and hello to SO many more incredible food options for my girl! Read more about this huge milestone on the blog now! Link in bio! . . . #NoGoingBacks #MiracleMaddie #Meningitis #Survivor #SpecialNeeds #SpecialNeedsMom #MommyBlogger #MomBlog #SAHM #Motherhood #BrainInjury #TBI #SpeechTherapy #FeedingTherapy #EpilepsyWarrior #InfantileSpasms #DevelopmentalDelay #Therapy #Milestones ...

Meet Charlee!
#littlestwarriorwednesday where we #spreadawareness 
Charlee was born full term with a full head of black hair. Everything was text book, from the pregnancy, to delivery. The first night after her birth she began choking on amniotic fluid and although I used the aspiration bulb I couldn’t help her clear it and she began turning blue. My husband ran for a nurse and she whisked Charlee our of my arms and down the hall. It was one of the scariest moments in ours lives at that point. After running various tests, the neonatologist said she had some pulmonary hypertension, which they thought would clear on its own as her body became more acclimated to life outside of the womb. Charlee was struggling to keep her O2 levels up while she was nursing, so they kept her in the NICU after I was discharged. Two nights later we received a phone call at 1am and my heart stopped. Charlee had another episode where she stopped breathing, turned blue and the nurses had to perform CPR on our sweet angel. I don’t think I will ever get that night out of my head. Over the next 16 days Charlee had two more desaturation episodes and every test imaginable was run with no definitive answers. Finally, they did a swallow study and it showed she was constantly refluxing, which was causing her esophagus to close and with her low muscle tone (also diagnosed later) she was unable to open it up again after she would reflux. At six months old she was seen again by the geneticist, who we first saw in the NICU and he performed whole exome sequencing, which revealed that Charlee had Wiedemann Steiner Syndrome. 
#WiedemannSteinerSyndrome causes low muscle tone, global developmental delays, GI issues, unique facial features, spinal anomalies, excessive hair growth, and behavioral issues. WSS is a fairly new Syndrome and there are only around 300 diagnosed worldwide. It is also a syndrome that is a spontaneous mutation and is not passed down from the parents. Thanks to social media and Facebook, we have found other families who have the same diagnosis and it has been an immeasurable resource for learning about WSS, the community is amazing and has become a part of our family!.

Meet Charlee! #littlestwarriorwednesday where we #spreadawareness Charlee was born full term with a full head of black hair. Everything was text book, from the pregnancy, to delivery. The first night after her birth she began choking on amniotic fluid and although I used the aspiration bulb I couldn’t help her clear it and she began turning blue. My husband ran for a nurse and she whisked Charlee our of my arms and down the hall. It was one of the scariest moments in ours lives at that point. After running various tests, the neonatologist said she had some pulmonary hypertension, which they thought would clear on its own as her body became more acclimated to life outside of the womb. Charlee was struggling to keep her O2 levels up while she was nursing, so they kept her in the NICU after I was discharged. Two nights later we received a phone call at 1am and my heart stopped. Charlee had another episode where she stopped breathing, turned blue and the nurses had to perform CPR on our sweet angel. I don’t think I will ever get that night out of my head. Over the next 16 days Charlee had two more desaturation episodes and every test imaginable was run with no definitive answers. Finally, they did a swallow study and it showed she was constantly refluxing, which was causing her esophagus to close and with her low muscle tone (also diagnosed later) she was unable to open it up again after she would reflux. At six months old she was seen again by the geneticist, who we first saw in the NICU and he performed whole exome sequencing, which revealed that Charlee had Wiedemann Steiner Syndrome. #WiedemannSteinerSyndrome causes low muscle tone, global developmental delays, GI issues, unique facial features, spinal anomalies, excessive hair growth, and behavioral issues. WSS is a fairly new Syndrome and there are only around 300 diagnosed worldwide. It is also a syndrome that is a spontaneous mutation and is not passed down from the parents. Thanks to social media and Facebook, we have found other families who have the same diagnosis and it has been an immeasurable resource for learning about WSS, the community is amazing and has become a part of our family! ...

Look at him!

Today I decided to ditch the pushchair for our hospital appointment and see how Rohan got on walking around on his own! It's safe to say he totally bossed it and had so much fun going into the lift and watching the doors open and close. He's met by a lot a smiles when people see him trundling past and it just makes me so proud to see him manoeuvring about.

In other news he had his audiology check up and whilst he's still congested his hearing seems to have improved a little and they weren't too concerned, thankfully. His gromits that he had inserted aren't doing their job, but we just have to wait until they fall out. We gave back his hearing aids too as they didn't feel it was worth him using them as he's hearing all the important sounds he needs to, and his underlying hearing (past the congestion in his middle ear) is perfect, so we know that's not the problem, it's just the pesky congestion! 
How's that for an instant(ish) picture and an update! Also thanks to his yaya for his sweet haircut!.

Look at him! Today I decided to ditch the pushchair for our hospital appointment and see how Rohan got on walking around on his own! It's safe to say he totally bossed it and had so much fun going into the lift and watching the doors open and close. He's met by a lot a smiles when people see him trundling past and it just makes me so proud to see him manoeuvring about. In other news he had his audiology check up and whilst he's still congested his hearing seems to have improved a little and they weren't too concerned, thankfully. His gromits that he had inserted aren't doing their job, but we just have to wait until they fall out. We gave back his hearing aids too as they didn't feel it was worth him using them as he's hearing all the important sounds he needs to, and his underlying hearing (past the congestion in his middle ear) is perfect, so we know that's not the problem, it's just the pesky congestion! How's that for an instant(ish) picture and an update! Also thanks to his yaya for his sweet haircut! ...

This post by @mymomologue could not have been more true for me yesterday. My youngest son started ABA therapy (an intensive behavior therapy) and I could not have been more nervous. Will it help him? Will it frustrate him more? Will he fall apart after they leave? Do I really want someone else in my house 3 hours/day? Can we afford it? Does he really need it? Am I making the right decision for him?
.
The list goes on and on. Physically I did way less than I usually do yesterday. I sat there and watched him for 2.5 hours. But when my head hit the pillow last night I was out almost immediately from being so mentally and emotionally drained.
.
Make sure you’re following @mymomologue for more relatable parenting memes..

This post by @mymomologue could not have been more true for me yesterday. My youngest son started ABA therapy (an intensive behavior therapy) and I could not have been more nervous. Will it help him? Will it frustrate him more? Will he fall apart after they leave? Do I really want someone else in my house 3 hours/day? Can we afford it? Does he really need it? Am I making the right decision for him? . The list goes on and on. Physically I did way less than I usually do yesterday. I sat there and watched him for 2.5 hours. But when my head hit the pillow last night I was out almost immediately from being so mentally and emotionally drained. . Make sure you’re following @mymomologue for more relatable parenting memes. ...

One of Joaquin’s communication goals is to make eye contact for “more”. Him and his amazing SLP at @mykidscommunicate have been working on it for a while. At his last session he was ON IT! Every time he wanted “more” he gave eye contact 👀🙌🏼😄👍🏼 I just love seeing his hard work pay off 💙 . Nonverbal Communication IS Communication 👏🏼
.
.
.
.
.
.
#JoaquinsLife#warrior #globaldevelopmentaldelay #developmentaldisabilities #developmentaldelay  #sensoryprocessing #sensoryprocessingdisorder #earlyintervention #specialneeds #specialneedskids #specialneedsparent #nonverbal #differentnotless #advocate #awareness #inclusion #movingmountains #communication #nonverbalcommunication #lovewhatmakesyoudifferent.

One of Joaquin’s communication goals is to make eye contact for “more”. Him and his amazing SLP at @mykidscommunicate have been working on it for a while. At his last session he was ON IT! Every time he wanted “more” he gave eye contact 👀🙌🏼😄👍🏼 I just love seeing his hard work pay off 💙 . Nonverbal Communication IS Communication 👏🏼 . . . . . . #JoaquinsLife #warrior #globaldevelopmentaldelay #developmentaldisabilities #developmentaldelay #sensoryprocessing #sensoryprocessingdisorder #earlyintervention #specialneeds #specialneedskids #specialneedsparent #nonverbal #differentnotless #advocate #awareness #inclusion #movingmountains #communication #nonverbalcommunication #lovewhatmakesyoudifferent ...

Walter was absolutely amazing at his first physio session. His physiotherapist was so so lovely and she was amazed by what he can do already and how much determination he has. Lots of work to do from here but I’m excited to watch him go from strength to strength and celebrate EVERYTHING he achieves.
.
.
#congenitalmusculardystrophy #musculardystrophy #raisingawareness #specialneeds #baby #babyboy #disabilityawareness #developmentaldelay #walter #son #brothers #warrior #motherhood #blueeyes #disability #musculardystrophyuk #ablenotalabel #raisingawarrior #motherhoodunplugged #happybaby #proud.

Walter was absolutely amazing at his first physio session. His physiotherapist was so so lovely and she was amazed by what he can do already and how much determination he has. Lots of work to do from here but I’m excited to watch him go from strength to strength and celebrate EVERYTHING he achieves. . . #congenitalmusculardystrophy #musculardystrophy #raisingawareness #specialneeds #baby #babyboy #disabilityawareness #developmentaldelay #walter #son #brothers #warrior #motherhood #blueeyes #disability #musculardystrophyuk #ablenotalabel #raisingawarrior #motherhoodunplugged #happybaby #proud ...

Most Recent

The first signs of standing! Mimi and the magic shoes. (Plus Batman splints) #goWILEYgo #angelmansyndrome #developmentaldelay #inchstones #cureangelman #physicaltherapykids #22qtie #rarechromo.

The first signs of standing! Mimi and the magic shoes. (Plus Batman splints) #goWILEYgo #angelmansyndrome #developmentaldelay #inchstones #cureangelman #physicaltherapykids #22qtie #rarechromo ...

It’s our 1 year Instagram Anniversary 🎉 We are so thankful for all of our new friends that we’ve made here 💙 Thank you for being there for support, for cheering our guy on, and for celebrating all of Joaquin’s accomplishments 🤗🙏🏼💙 We are excited to share more this year as we go through the diagnosis process, genetics testing, AAC therapy, & all the progress 🙌🏼 Cheers to another great year! .
.
.
.
.
.
#JoaquinsLife #warrior #instagramanniversary #globaldevelopmentaldelay #developmentaldisabilities #developmentaldelay  #sensoryprocessing #sensoryprocessingdisorder #earlyintervention #specialneeds #specialneedskids #specialneedsparent #nonverbal #differentnotless #advocate #awareness #inclusion #iamable #movingmountains.

It’s our 1 year Instagram Anniversary 🎉 We are so thankful for all of our new friends that we’ve made here 💙 Thank you for being there for support, for cheering our guy on, and for celebrating all of Joaquin’s accomplishments 🤗🙏🏼💙 We are excited to share more this year as we go through the diagnosis process, genetics testing, AAC therapy, & all the progress 🙌🏼 Cheers to another great year! . . . . . . #JoaquinsLife #warrior #instagramanniversary #globaldevelopmentaldelay #developmentaldisabilities #developmentaldelay #sensoryprocessing #sensoryprocessingdisorder #earlyintervention #specialneeds #specialneedskids #specialneedsparent #nonverbal #differentnotless #advocate #awareness #inclusion #iamable #movingmountains ...

Surgery Day!  My Little Monkey has tubes put in his ears and his adenoids removed.  Recovery was rough on me and rather than a slow wake up he went from dead asleep to standing in under a minute.  Thank goodness his Mimi was here to snuggle him!

#mom #momlife #surgery #eartubesurgery #adenoidectomy #poorlittleman #momofboys #boymom #boymomlife #friday #developmentaldelay #sensoryprocessingdisorder #warrior #strongboy #nikilikes.

Surgery Day! My Little Monkey has tubes put in his ears and his adenoids removed. Recovery was rough on me and rather than a slow wake up he went from dead asleep to standing in under a minute. Thank goodness his Mimi was here to snuggle him! #mom #momlife #surgery #eartubesurgery #adenoidectomy #poorlittleman #momofboys #boymom #boymomlife #friday #developmentaldelay #sensoryprocessingdisorder #warrior #strongboy #nikilikes ...

According to a recent article by Ed Source, most school district have yet to approve textbooks or materials aligned to the new state standards.  The new standards emphasize critical thinking over rote memorization, more hand-son science projects, and require students to investigate, collect and use data, and give evidence-based explanation for what they discover. 
Students in high school (starting in the tenth grade) as well as students in the fifth and eighth grades began taking the California Science Test in March as required by the federal Every Student Succeeds Act. 
As reported by Ed Source, the test is likely to be a struggle for many 5th grade students who often have had little exposure to science while in elementary school.  Science has taken a backseat to math and reading in elementary schools as schools worked  to improve test scores in math and English Language Arts to avoid federal sanctions under the No Child Left Act of 2001.
Parents can obtain their child's test scores from their school in November or December, according to the California Department of Education.

__

If you have questions about your child’s special education program, contact us at (213) 213-2530 or support@sjmlawgroup.com to schedule a free consultation!
__

#Students #SpecialEducation #Attorney #IEP #IDEA #SpecialNeeds #LearningDisability #ADHD #Autism #AutismAwareness #AutismAcceptance #Disability #DevelopmentalDelay #DevelopmentalDisability #Education #Accommodations #LosAngeles #EchoPark #dtla #Educación #EducaciónEspecial #hablamosespañol #sehablaespañol.

According to a recent article by Ed Source, most school district have yet to approve textbooks or materials aligned to the new state standards. The new standards emphasize critical thinking over rote memorization, more hand-son science projects, and require students to investigate, collect and use data, and give evidence-based explanation for what they discover. Students in high school (starting in the tenth grade) as well as students in the fifth and eighth grades began taking the California Science Test in March as required by the federal Every Student Succeeds Act. As reported by Ed Source, the test is likely to be a struggle for many 5th grade students who often have had little exposure to science while in elementary school. Science has taken a backseat to math and reading in elementary schools as schools worked to improve test scores in math and English Language Arts to avoid federal sanctions under the No Child Left Act of 2001. Parents can obtain their child's test scores from their school in November or December, according to the California Department of Education. __ If you have questions about your child’s special education program, contact us at (213) 213-2530 or support@sjmlawgroup.com to schedule a free consultation! __ #Students #SpecialEducation #Attorney #IEP #IDEA #SpecialNeeds #LearningDisability #ADHD #Autism #AutismAwareness #AutismAcceptance #Disability #DevelopmentalDelay #DevelopmentalDisability #Education #Accommodations #LosAngeles #EchoPark #dtla #Educaci ón #Educaci ónEspecial #hablamosespa ñol #sehablaespa ñol ...

Someone’s been on Spring Break all week, so let’s just say productivity has been pretty low🤷🏻‍♀️
.
And it’s OK! Because these moments are everything😍
.

You know, I NEVER grew up thinking “Oh I’m going to work from home one day”, but I also never saw me being a mother either. Sometimes life takes you in a different direction and it will be even BETTER that what you had imagined.
.
Grateful for the opportunities and multiple sources of income that allow me to have a flexible schedule and be HERE with my little dude. I never have to miss a thing and I don’t take it for granted🖤.

Someone’s been on Spring Break all week, so let’s just say productivity has been pretty low🤷🏻‍♀️ . And it’s OK! Because these moments are everything😍 . You know, I NEVER grew up thinking “Oh I’m going to work from home one day”, but I also never saw me being a mother either. Sometimes life takes you in a different direction and it will be even BETTER that what you had imagined. . Grateful for the opportunities and multiple sources of income that allow me to have a flexible schedule and be HERE with my little dude. I never have to miss a thing and I don’t take it for granted🖤 ...