I thought I should share a little of Tanner’s background. First and foremost, I want this account to offer HOPE for parents! When my son started seizing and desatting 24 hours after a difficult birth that ended in an emergency c-section, my world was turned upside down.
In the operating room a baby code blue was called and it took them over three minutes to revive him. His MRI results left us in shock. During birth he had experienced a catastrophic MCA ischemic stroke that had wiped out almost half of the left side of his brain. They believe that a very large blood clot broke in two. Half of that went to the left side where the damage was caused. The other half went to the right side of his brain, where the clot could still be seen on the MRI (or angiogram...?). There was enough blood flow going around that clot that it didn’t cause damage on the right side.
I wish back then I could have seen the healthy, happy, bright eight year old who my son is today. Even though he was diagnosed with cerebral palsy as a young toddler, most people have no clue that he even has it today. He plays soccer, basketball, baseball, rides a two wheel bike, roller blades, swims, climbs trees, beats us all at Risk and Monopoly, and has a killer sense of humor. Today Tanner is in second grade, has no IEP, is a great reader, loves math and is very good at it, and is currently writing a book.
I only share this so you know that there is HOPE after a catastrophic brain injury. I had no clue it was possible to function like Tanner does with such a large brain injury. I am very sensitive to the fact that all brain injuries are different and may have different outcomes for different reasons. I have never shared Tanner’s story because I have felt guilty for how well he is doing. If his story can help even one person though, I believe it is worth sharing. I am just trying to manage my anxiety regarding it.
If I could say anything, it would be don't "wait and see". The first weeks, months, and years are critical to helping heal the brain. It is in those first years that you can help a damaged brain rewire and establish correct movement patterns. cont. in comments.. ...
Whoa, it’s been a day!!! Homeschool tutorial day means a 5 am wake up and go-go-go until 4pm. We suspected Bah-Bah, the gas station rescue sheep, was in pre-labor this morning but I wasn’t sure what we’d come home to this afternoon. I came home to a laboring mama-to-be who was pushing and pushing with no real progress which had this mama freeeeeaking out! A call to the vet later, I had my hand all up in there trying to get this little guy into the world. In the end, thanks to a wonderful fellow farming friend, who is apparently stronger than I am (who am I kidding, she’s definitely stronger than me, lol), Patches is finally here!! Mama and baby boy seem to be doing well. I’ve given him supplemental colostrum because we lost lambs last year and we think it was a colostrum issue. I pray this no-so-little-guy makes it!! #neveradullmoment ...
Well here it is my lovely patient followers!! Meet my dumpling, Baby Andy! After 24 hrs of labor we met our babe with an unexpected c section (but not emergency). He was too big for my pelvis!!! We survived our first night and we’re already falling for his chubby cheeks and sweet cuddles. The night squawking not so much 😂 ...
Welcome to the world Nicholas Ernesto! Jenna good luck with this kiddo, he only made you suffer for 15 hours! No big deal 😂 you did great. It’s definitely a bittersweet moment how Nicholas was born a day after your moms birthday. She would be proud and was definitely watching over you. #junebaby#babybrother#babyperez#NEP#newborn#longlabor#thestrugglewasreal ...
✨the view from the pool✨
It can be so discouraging after a long night of contractions to see daylight come. You thought your baby would be here by now. To see the light almost makes you angry. You might feel like you can’t go one more hour.
We understand. We know. We care.
That daylight after a long night of labor does something to a mamas brain. So we’re going to remind you that you are doing great, that we’re right here with you, and that you can and are doing this beautifully. We will wipe your tears with a cool cloth. We will not try to convince you it isn’t hard or that it doesn’t suck.
You can do all the right things, take all the right classes, and play all the best music and still get a long labor. It doesn’t mean you didn’t do enough of this or did too much of that. It doesn’t mean your body is broken. It just is. And we will help you and encourage you. We will discuss options if we need to.
You are a rockstar. The daylight can also bring a new wave of energy. You’ve got this.💙